Designing and Implementation of Web-Based Personal Health Record for Patients with Inflammatory Bowel Disease

Abstract

Background:

Using personal health record (PHR) for the management of inflammatory bowel disease (IBD) as a chronic disease can be beneficial for the patients and provide their needs and make them more informed. PHRs offer an integrated and comprehensive view of health information, including information people generate themselves and information from doctors , and information from their pharmacies and insurance companies. Using personal health record is one of the crucial aspects of improving personal health. In this survey, we designed and implemented a web-based PHR for patients with inflammatory bowel disease (IBD) in order to help improve the health status of the patients with IBD.

Materials and Methods:

In designing level based on observing methods and assessing documents, at first, the minimum data set was set and then required areas of designing PHR using the questionnaire method and determining content validity by IBD experts were set. The requirements were categorized based on continuous care record standards. In this survey, the process of modeling and implementing patients and physicians modules was done, too.

Results:

Basic capabilities of the system were determined in four parts. Then, the results of the survey of 17 IBD experts about 172 required data in five areas with Cronbach's alpha upper 0.7 were set. Designing and implementing were done for patients and physicians in two different modules.

conclusion:

This system makes information coherent and enables us to access and manage the health information of the patient. We could also do remote monitoring of patients in long term cares. Also by using the results of the questionnaire survey in patients and physicians modules, we could check out changes in the quality of patients’ lives and severity of the disease during the treatment.